ADAPT (Antitrypsin Deficiency Assessment and programme for Treatment) was established in 1996 under the directorship of Professor R. A. Stockley in collaboration with Bayer Biologicals (now Talecris) the University Hospital Birmingham NHS Foundation Trust and the University of Birmingham.
The purpose was to establish a registry of patients with AATD in the UK, to understand how the disease developed and affected patients, to develop new methods for assessing the severity, monitor progression, develop predictors of progression and design clinical trials of relevant treatments.
In addition to those aims the programme was developed to provide patient and relative education, provide free and accurate testing for deficiency via finger-prick testing and an annual patient meeting to discuss current progress in understanding and treating the disease and work closely with and develop a patient lead organisation.
(J Mugford website logo link here)
To date ADAPT has over 1,000 Pi Z patients on the database, has trained and developed 19 doctors in clinical management and research in the disease, published over 200 papers and reviews on the topic and designed and delivered 4 clinical trials of treatment for AATD.
Current Members of the Clinical Team include:
Mrs. Rebecca Bray Co-ordinator
Dr. Anita Pye Clinical Trials Co-ordinator
Diane Griffiths Respiratory Nurse
Ross Edgar Research Physiotherapist
Dr. Helen Ward Clinical Research Fellow
Dr. Helen Stone Clinical Research Fellow
Dr. Nicola Sinden Clinical Research Fellow
Dr. Jennie Gane Clinical Research Fellow
Lung Function & Sleep Department
Outpatients, Ground Floor
Queen Elizabeth Hospital Birmingham
Mindelsohn Way, Edgbaston
Birmingham. B15 2WB
Telephone Becky: 0121 371 3885
Telephone Anita: 0121 371 3886
Fax: 0121 371 3887